Tonight Grayson went to bed early. Rare for him. Me on the other hand, I am up way too late. So is my husband but then he is a bit of a night owl and stays up later than me on a regular basis. I’m just up thinking about Grayson’s appointment with the developmental pediatrician tomorrow. I’m worried about him getting a diagnosis and being labeled. I am worried that he won’t get one and we’ll have a child who needs help but can’t get it when he gets older. I am worried they will want to evaluate him there and he’ll have a melt down like he did at the school evaluation. We have the follow up with the school this week too and we’ll see what the school psychiatrist says as well at the school therapists. Just going to be one of those weeks. My husband says if he gets a diagnosis that it doesn’t change anything. He’s still Grayson and he’s still the same son we love. And he’s right but I know there are some family members in particular who will be upset by the diagnosis. Mostly my husband’s mother who has already made it clear she is displeased Grayson has an occupational therapist and an early intervention worker. She was ok with the speech therapist originally back in 2011 but now she seems annoyed by that as well. She tells me Grayson is fine and smart and doesn’t need help.
Grayson is smart. That much is true. He knows his letters and numbers. He knows his colors and shapes. But he does need help. His OT gave us a copy of the evaluation she did with him last month and he shows severe sensory dysfunction in all area. While he is doing much better with speech and his basic understanding and ability to use language are much better and in the normal range, he still loves saying phrases like a broken record several times a day, still doesn’t ask questions or ask for things (just makes demand statements) and struggles to have a two sided conversation.
Grayson can’t handle things like the grocery store or library story time or the playground. He gets over stimulated and melts down. His OT gave us chewy tubes for him because he was chewing on all his sippy cup lids whenever he was upset. He also chews on plastic forks and straws. He still eats crayons and playdough no matter how many times he’s told they are not good to eat. I catch him putting toys in his mouth on a regular basis too. He’s now added lining up legos along with his cars. He obsessively opens and closes cupboards and plays with light switches. Today he had every cupboard in the kitchen open and shrieked when I tried closing them and had a melt down even thought he had not been in the kitchen when I tried sneaking in to close the cupboards.
Maybe I will try to get some sleep before I stress anymore.